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Knowledge Translation > Preeclampsia Foundation

Background

Established in 2000, the Preeclampsia Foundation works to reduce maternal and infant illness and death due to pre-eclampsia, HELLP syndrome, and other hypertensive disorders of pregnancy through a diverse array of resources and advocacy efforts. The Foundation comprises an empowered community of patients and their families, and medical experts. Its four mission areas focus on raising public awareness, providing education and support to patients and healthcare providers, improving healthcare practices, and catalysing research.

The Foundation not only provides these resources to help mothers and families understand and cope with serious complications (and/or losses), but also advocates on behalf of the thousands of individuals whose lives have or will be affected by pre-eclampsia. In its collaboration with the University of British Columbia, and St. George’s University of London, the Foundation has enhanced its ability to reach out to affected women and families in low- and middle-income countries (LMICs), as well as to continue to catalyse pre-eclampsia-focused research by LMIC-based clinicians and scientists.

Executive Director Eleni Tsigas has led the Foundation to its current position as a sustainable, mission-driven, results-oriented organisation, and serves as a member of the PRE-EMPT Technical Advisory Group (TAG) and the Knowledge Translation (KT) working group.

Goal

The Preeclampsia Foundation reduces maternal and infant illness and death due to preeclampsia, HELLP syndrome, and other hypertensive disorders of pregnancy by providing patient support and education, raising public awareness, catalyzing research and improving healthcare practices.  We envision a world where preeclampsia no longer threatens the lives of mothers and babies.

The Preeclampsia Foundation will continue to work to enhance patient advocacy and education, including expanding The Preeclampsia Registry to enrol diverse populations. The Foundation is also working with The Global Library of Women’s Medicine (GLOWM) and other partner organisations to translate patient education materials into additional languages, and to extend the distribution of this information.